Video - Learning to live with lymphedema

In the Spring of 2015, several participants from our Learning to Live with Lymphedema pilot studies came together to create a video.  Participants discussed coping strategies and how to live hopefully while experiencing lymphedema after cancer. 

The video was created in collaboration with Dr. Ryan Hamilton from the University of New Brunswick and a PhD student in the School of Rehabilitation Sciences at the University of Ottawa, Josée Boulanger.  This research was supported, in part, with funding from the Canada Research Chairs program.

After only two weeks, the video had almost 100 views!  We launched the video in the Fall of 2015 and held a group discussion in order to generate feedback.  Our audience suggested that we create a second video that would include health professionals talking about treatment.  Another project to come!

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Impact of lymphedema

Dr. Ryan Hamilton (University of New Brunswick) and I recently completed interviews with cancer survivors in New Brunswick and Ontario.  Participants in this qualitative study had experience with either lower or upper limb lymphedema.  In this article, Dr. Hamilton and I explore the impact of lymphedema and the ways in which participants felt their condition was simultaneously visible and invisible.

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Ethnodrama & lymphedema poster summary available

Our project began several years ago in Saskatchewan with a group of engaged and committed breast cancer survivors who were living with lymphedema.  Since that time, our research (led by Drs. Liz Quinlan and Roanne Thomas) has led to several live performances across Canada, a YouTube channel (link here), and other initiatives.

A poster summarizing some of the impact of this research appears below and is available for download in French and English below.

PosterEthnodramaEnglish

Download poster (French)

Download poster (English)

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